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The Center for Self-Determination
The Center for Self-Determination is a non-profit organization, established in 2000, operating as the primary clearinghouse, training and technical assistance source on Self-Determination in the United States and other countries. The Center is devoted to working within the public and private sector to move power and authority over resources directly to individuals with disabilities, families and allies.
For a variety of reasons, the transformation of case management to support individuals in building lives full of opportunity and relationships, rather than placing in programs, has not occurred as so many had wished. In the past several years, the name case manager has been changed to support coordinator, just as teams are now called circles, but little in the work or the process has been changed. The reasons vary place to place, from lack of will to lack of leadership to lack of resources to lack of trust to lack of knowledge. There are many in current unchanged systems, however, who very much want to get away from desks and paper in order to spend a maximum amount of their time doing something different have the time and support necessary to help people with disabilities build lives, but are unable to get out from under the administrative/monitoring functions within the traditional system. Creativity and spirit become stifled in many situations and once again people who have disabilities remain in their perpetual state of waiting—waiting for change, waiting for friends, waiting for a place of their own, waiting for life. The years lost will never be regained.
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The National Gateway to Self-Determination
The National Gateway to Self-Determination is a consortium of five primary University Centers on Excellence in Developmental Disabilities (UCEDDs) and the Association of University Centers on Disability (AUCD).The overall goal of the NGSD is to establish a sustainable, evidence-based training system that enhances self-determination training programs that lead to quality of life outcomes for individuals with developmental disabilities throughout the lifespan.